Table of Content
Collection of Personal Information
You may visit this site without providing us with any personally identifiable information. You may choose to submit personally identifiable information in certain circumstances, such as when you join the mailing lists for SBA newsletters and other mailings; purchase an item online from SBA; make an online contribution to SBA; or register for access to certain pages on this site. In these instances, we may ask you to provide information, including your name, address, and other similar contact information.
We may also ask you to create a username and password to access certain restricted pages on this site. Where we ask for personally identifiable information on this site, we may not be able to process your request or provide you with access to restricted pages if you decide to withhold any of the information we request.
Personal Information From Children
We do not knowingly collect, disclose, or use personally identifiable information provided by a minor under the age of 13. If you learn that your child has provided personally identifiably information to SBA, please contact us and we shall remove that information from our lists.
Use of Personal Information
We may provide your personally identifiable information to SBA chapters throughout the United States and to contracted vendors that assist SBA with mailings and online sales transactions.
SBA does not sell or otherwise share with organizations who are not our partners any of the personally identifiable information received on this site. SBA may use personally identifiable information for SBA-specific direct mailings, such as email updates, newsletters, and solicitation and advocacy letters, and we may share your information with organizations and companies that partner with it to provide information, products, and services that we believe are of real value to the community we serve. If you do not wish for us to share your information with our partners, please let us know by contacting us at the email address below, and we will gladly respect your decision to “opt-out” of receiving communications from SBA and/or its partners.
SBA may also share with third-parties aggregate information regarding online visitors. Aggregate information identifies overall visitor activity, but does not provide information on any individual user.
Internet Information Security
We take reasonable precautions to ensure that any personally identifiable information you provide on this site is kept confidential and stored in a secure environment, and that only those personnel with legitimate business purposes will have access to this information. Even so, we cannot guarantee that data provided to us will not be subject to loss, alteration, misuse, unauthorized access, disclosure, or destruction. It is important to be aware that all internet transmissions are subject to security breaches and errors. You should take precautions in choosing the information you send to SBA via email and safeguard any passwords or special types of identification you use to access this site.
Personal information that is voluntarily submitted to SBA online, via electronic communication, or otherwise, such as through email listervs, may be maintained or accessed in servers or files located in the United States under United States privacy laws, which the European Union has not deemed to provide "adequate" privacy protection. If you do not consent to having your information processed and stored in the United States, please do not provide it.
A cookie is a piece of data that a website may transmit to your browser. The cookie may be stored on your computer to identify your computer when you return to the site, but does not identify you as an individual user. SBA uses “session only” cookies to track your use of this site that do not retain your personal information.
Changes to Your Personal Information.
We strive to ensure the accuracy of any personal information you provide to us online. If you would like to update or review the personal information we have on file for you, please email your request to [email protected]. To assist us in properly updating our files, please include your old and new personal information in your request.
Spina Bifida Association
1600 Wilson Blvd. Suite 800
Arlington, VA 20016
(800) 621-3141 or (202) 944-3285
or by email: [email protected]
The Spina Bifida Association (“SBA”) is a national non-profit organization that serves adults and children who live with the challenges of Spina Bifida. We welcome United States residents to visit and use this site in accordance with the terms and conditions delineated below, as well as all applicable United States laws and regulations. This site and its contents are intended for access and use solely by United States residents. Please read these terms with care because this is a legally binding agreement between you and SBA, the owner and operator of this website.
OWNERSHIP AND INTELLECTUAL PROPERTY.
The SBA website is made available for your personal, non-commercial use only. The materials on this site are the property of SBA, its licensors, or contributors of User Submissions (as defined below) and are protected by U.S. copyright laws, other copyright laws, and international conventions. Except as explicitly provided in this Agreement, you may not distribute, transmit, display, reproduce, modify, create derivative works from, or otherwise exploit any of the materials on this site. You may display and print a single copy of any page or illustration on the site for your personal, non-commercial use, but you may not otherwise reproduce any material appearing on this site without the prior written consent of the owner. You may not store any significant portion of, nor distribute copies of, materials found on this site, in any form (including electronic form), without prior written permission from the owner. You may contact us using our “Email Us” link on the website to request permission to reproduce or distribute materials found on SBA.
The trademarks, Spina Bifida Association and our logo, on this site are the property of, licensed to, promoted or distributed by SBA.
The content of this site is subject to copyright protection.
Copyright © Spina Bifida Association. All rights reserved. Unauthorized use prohibited.
SBA has a copyright in all proprietary and copyrightable text, graphics and computer code on this web site, the overall design of this site, and the selection, arrangement and presentation of all materials on this site, including information in the public domain.
You are free to establish a hypertext link to this site so long as the link does not state or imply any endorsement or sponsorship of you, your company, or your site by SBA. However, without the prior written permission of SBA, you may not frame any of the content on the site nor incorporate into another website or other service any intellectual property of SBA.
MEDICAL INFORMATION DISCLAIMER
The information on this web site is not intended to be, nor is it, medical advice on the management or care of a person with Spina Bifida. Our goal is to provide information that is helpful, accurate, and current, but knowledge in the field of Spina Bifida is growing rapidly and all data are subject to change without notice. Neither SBA nor any parties who supply information to this system make any warranty concerning the accuracy of any information found on or exchanged through this system. No endorsements of any products which appear on this web site are given or implied by SBA.
SBA does not endorse any specific medical regime. You should not change your medical schedules or activities based on the information provided at this site. Always consult with a doctor, healthcare provider, or other medical professional before making any medical decisions.
Please note that SBA does not employ medical personnel in their national office. If you have a specific medical question regarding Spina Bifida please contact a Spina Bifida clinic or your physician.
DISCLAIMER OF WARRANTIES, LIMITATION OF LIABILITY, AND INDEMNIFICATION
The information provided here is for informational, educational and entertainment purposes only. It is not intended to replace, and should not be interpreted or relied upon as, medical or professional advice. Your use of this site means that you agree to the terms and conditions detailed in our disclaimer.
YOUR USE OF THIS WEB SITE IS AT YOUR OWN RISK. BY NAVIGATING THIS WEB SITE, YOU WAIVE ANY AND ALL CLAIMS RELATING TO THE USAGE OF MATERIAL OR INFORMATION SUPPLIED BY SBA. SBA AND PARTIES INVOLVED IN DEVELOPING, PRODUCING, OR DELIVERING THIS SITE SHALL NOT BE LIABLE FOR ANY DAMAGE OR INJURY OF ANY KIND ARISING FROM YOUR ACCESS TO, USE OF, OR INABILITY TO ACCESS OR USE THIS SITE. SBA AND THE AFOREMENTIONED PARTIES ALSO SHALL NOT BE LIABLE FOR ANY DAMAGE OR INJURY RESULTING FROM ANY OMISSIONS OR ERRORS IN THE CONTENT OF THIS SITE OR FROM YOUR RELIANCE ON INFORMATION OBTAINED FROM THIS SITE. IF YOU RELY ON THIS WEBSITE OR ANY INFORMATION, PRODUCT OR SERVICE AVAILABLE THROUGH THIS WEBSITE, YOU DO SO AT YOUR OWN RISK. YOU UNDERSTAND THAT THERE MAY BE DELAYS, OMISSIONS, INTERRUPTIONS, INACCURACIES, AND/OR OTHER PROBLEMS WITH THE INFORMATION, PRODUCTS, AND SERVICES PUBLISHED ON OR PROMOTED OVER THIS SITE. THIS WEBSITE IS PROVIDED TO YOU "AS IS." SBA, ITS AFFILIATES, AGENTS, VENDORS AND LICENSORS CANNOT AND DO NOT WARRANT THE ACCURACY, RELIABILITY, COMPLETENESS, CURRENTNESS, NONINFRINGEMENT, MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE OF THE ADVICE, OPINIONS, STATEMENTS OR OTHER INFORMATION AVAILABLE THROUGH THIS WEBSITE (OR ANY INFORMATION, GOODS OR SERVICES THAT ARE REFERRED TO, ADVERTISED OR PROMOTED ON, OR SOLD THROUGH THIS WEBSITE). SBA, ITS AFFILIATES, AGENTS, VENDORS AND LICENSORS DO NOT GUARANTEE THAT THE WEBSITE WILL BE ERROR FREE, OR CONTINUOUSLY AVAILABLE, OR THAT THE WEBSITE WILL BE FREE OF VIRUSES OR OTHER HARMFUL COMPONENTS.
UNDER NO CIRCUMSTANCES WILL SBA OR ITS AFFILIATES, AGENTS, VENDORS OR LICENSORS BE LIABLE TO YOU OR ANYONE ELSE FOR ANY DAMAGES OTHER THAN DIRECT DAMAGES, ARISING OUT OF YOUR USE OF THIS WEBSITE OR ANY PRODUCT OR SERVICE LINKED TO FROM OR ADVERTISED OR PROMOTED ON THIS WEBSITE, INCLUDING, WITHOUT LIMITATION, CONSEQUENTIAL, SPECIAL, INCIDENTAL, INDIRECT, PUNITIVE, EXEMPLARY, OR OTHER DAMAGES OF ANY KIND (INCLUDING LOST REVENUES OR PROFITS, LOSS OF BUSINESS OR LOSS OF DATA), EVEN IF WE ARE ADVISED BEFOREHAND OF THE POSSIBILITY OF SUCH DAMAGES. YOU HEREBY ACKNOWLEDGE THAT USE OF THIS WEBSITE IS AT YOUR SOLE RISK. BECAUSE SOME STATES/JURISDICTIONS DO NOT ALLOW THE EXCLUSION OR LIMITATION OF LIABILITY FOR CONSEQUENTIAL OR INCIDENTAL DAMAGES, SOME OF THESE LIMITATIONS MAY NOT APPLY TO YOU. YOU AGREE TO INDEMNIFY AND HOLD HARMLESS SBA, ITS AFFILIATES, AGENTS, VENDORS AND LICENSORS, AND THEIR RESPECTIVE EMPLOYEES, OWNERS AND REPRESENTATIVES AGAINST ANY AND ALL CLAIMS, OF WHATEVER NATURE, THAT ARISE OUT OF ANY BREACH BY YOU OF THIS AGREEMENT OR YOUR USE OF THIS WEBSITE.
This site is intended for access and use solely by residents of the United States and subject to all applicable laws of the United States, and in particular, the District of Columbia. Use of this site implies and is subject to the consent to the laws of the United States and the jurisdiction of the courts of the District of Columbia.
RESERVATION OF RIGHTS
Visitors must contact SBA to resolve any disputes that arise from use of this site.