We are able to put our mission into action, thanks to our largest annual national fundraiser, Walk-N-Roll for Spina Bifida.

  • Research: SBA led the development of 25 Health Care Guidelines, designed to help guide those with Spina Bifida to get the best care throughout their lives.
  • Advocacy: We make over 50 visits to Capitol Hill annually to lobby for continued Spina Bifida funding, research, insurance benefits, and more.
  • Support: Our National Resource Center provides information and referrals to over 2,000 English and Spanish inquiries each year.
  • Education: We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida, covering topics such as skin health, becoming a parent, and financial planning.
SBA Chapters support and connect communities. We put our mission into action in tangible ways—providing resources, aid, connections, and a strong voice on your behalf.  
  • Build Valuable Community Networks: We host events that combine fun with peer-to- peer support, build a great social network, and create opportunities for sharing experiences. You can attend events such as a holiday party, Snowflake Shake, and more.
  • Provide Special Assistance Grants: We provide special assistance grants that help our community with some of the challenges and demands that come from living with Spina Bifida. Our grants assist families with everything from wheelchair repair to helping cover unexpected out-of-pocket medical expenses related to Spina Bifida care.
  • Empower Local Leaders: You can support your community by getting involved at the local level. Every year we host training for Chapter Advisory Council Members and send representatives to the National Leadership Institute.
  • Advance Advocacy: Together we advocate for bills to improve access to care at your state level. 
  • Expand Awareness and Outreach: We constantly work to be a powerful voice for increasing awareness of Spina Bifida. We participate in the national Spina Bifida Awareness Month campaign, partner with other key organizations to expand public awareness, and present welcome baskets to parents of newborns with Spina Bifida.

Get The Word Out