About the Spina Bifida Association (SBA)

Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect.

Our Mission: To build a better and brighter future for all those impacted by Spina Bifida. We work to make a practical, positive difference every day, helping to improve care so you can enjoy life to the fullest and expect a better future.

Our Vision: A world where everyone impacted by Spina Bifida is accepted and thrives. 

Mission in Action:

Research: SBA led the development of 25 Health Care Guidelines, designed to help guide those with Spina Bifida to get the best care throughout their lives.

Advocacy: In 2022 attended 86 meetings with members of Congress to lobby for continued Spina Bifida funding, research, insurance benefits, and more.

Education: We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida, covering topics such as skin health, becoming a parent, and financial planning.

Support: Our National Resource Center provides information and referrals to over 2,000 English and Spanish inquiries each year.