Our Mission: To promote the prevention of Spina Bifida and enhance the lives of all affected. We work to make a practical, positive difference every day, helping to improve care so you can enjoy life to the fullest and expect a better future.
Our Vision: We envision a world in which no pregnancies are affected by Spina Bifida. People living with Spina Bifida thrive in a barrier-free world that offers ready access to an array of effective treatment options and uniformly excellent medical care. Their individual life choices are not influenced by Spina Bifida and all experience rich and personally fulfilling lives.
Putting the Mission into Action Nationally:
Research: SBA led the development of 25 Health Care Guidelines, designed to help guide those with Spina Bifida to get the best care throughout their lives.
Advocacy: We make over 50 visits to Capitol Hill annually to lobby for continued Spina Bifida funding, research, insurance benefits, and more.
Education: We offer in-person and online education programs featuring medical experts, parents, and adults with Spina Bifida, covering topics such as skin health, becoming a parent, and financial planning.
Support: Our National Resource Center provides information and referrals to over 2,000 English and Spanish inquiries each year.