50% of the net funds raised at Corporate Chapter Walk-N-Roll for SB events stay at the local chapter level and the Chapter Advisory Council decides how the funds are to be spent. Examples of the ways funds are allocated include:

  • Spina Bifida Community Networking Events 
  • Scholarships to National Conference or Education Days
  • Special assistance granted to Spina Bifida families or individuals in need
  • Advocating for local clinics, state legislative improvements, and improved health care
  • Local Spina Bifida awareness and prevention
  • Mentorship programs
  • Support groups
  • Newborn baskets
  • Adaptive supplies library
 

The remaining 50% of net funds raised go to the National Spina Bifida Association office to cover the costs of managing the chapter and help fund many other mission critical programs which include the following:

  • Plans, hosts and staffs the SBA National Conference every other year

  • Plans, hosts and staffs Education Days within Corporate Chapters service areas

  • Plans, hosts and staffs the Spina Bifida World Congress every five years to highlight and share the latest research on the care of people with Spina Bifida across their lifespan

  • Leads an Adult Advisory Committee with representatives from across the country to ensure that SBA is working to meet the needs of our growing adult community

  • Creates and disseminates surveys to various populations within the community to better understand the needs of those populations

  • Updates and improvements to the Spina Bifida Healthcare Guidelines to treat people with Spina Bifida across the lifespan

  • Management of the National Resource Center – the information, referral, and call center for anyone in the Spina Bifida community

  • Design and implementation of an annual Spina Bifida Awareness Month campaign that features stories from across the country to celebrate the SB community

  • Works to build relationships with famous personalities and sports stars to raise awareness and heighten our profile

  • Lobbies for legislation to improve the life and health of people living with Spina Bifida on a federal, state, and local level

  • Publishes a quarterly Spina Bifida magazine with tips and updates for our community 

  • Builds partnerships with other NGO's, corporate organizations, and government entities to address the needs of people living with Spina Bifida