SBA - Inspired by Mitch
Inspired by Mitch's Story?
You can make a difference in the life of someone living with Spina Bifida today by making a donation to SBA or by becoming an advocate for our cause.
What is Spina Bifida?
Spina Bifida results when a baby's spinal column fails to close properly during fetal development, leaving a gap or lesion behind. While the gap can be closed or lesion removed, Spina Bifida is a lifelong birth defect that can result in paralysis and other mobility issues, neurological complications, bowel & bladder incontinence, and learning difficulties. We don't know what causes Spina Bifida. Therefore, scientists have not been able to figure out how to prevent it.
Why Should I Give?
Since 1973, the Spina Bifida Association (SBA) has been the only voluntary health agency in the nation dedicated to improving the quality of care for those living with Spina Bifida. Your tax-deductible gift today will be used immediately to fund education, advocacy, research, and support efforts that will enable individuals in the Spina Bifida community and their families to lead productive and fulfilling lives. Christian Brothers Automotive Corporation partnered with SBA on the video you watched to honor Mitch's drive to always put others first, his giving nature, and his desire to raise awareness about Spina Bifida.
How Can I Become an Advocate?
Every year, SBA works to educate members of Congress about the importance of the Spina Bifida Program at the Centers for Disease Control & Prevention (CDC). The CDC houses the National Center on Birth Defects & Development Disabilities and collects data from clinics across the nation through its National Spina Bifida Patient Registry. Registry data is used to create new research studies and programs. The data has already resulted in the development of urological protocols for young children and a provider and patient wound care education initiative. SBA also advocates for any issue that affects the Spina Bifida community - whether it be related to rights, access, or quality of care. Since Spina Bifida is considered a pre-existing condition, SBA has been hard at work recently, rallying the community to contact their representatives and senators about cuts to Medicaid, the formation of high risk insurance pools, and possible loss of insurance.
For additional questions or information on other ways to give, please contact Elizabeth (Liz) Merck, Director of Development, at firstname.lastname@example.org or (202) 618-4754.