The Care Cliff

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The "adult care cliff" for people with Spina Bifida is real.

Yvette, a mother of a child with Spina Bifida, has been piecing together Kirsten's care for nearly two decades, having to call specialist after specialist to ask if they know anything about Spina Bifida, only to be turned away or receive inadequate care. Yvette is not only a mother of a child with Spina Bifida, she is a working professional, care coordinator, and often primary and emergency care provider all in one. Kirsten and Yvette's story is, sadly, quite typical

Adults living with Spina Bifida, and their loved ones, are on their own when it comes to coordinating the care they need to lead full and productive lives.

Fortunately, YOU can do something about it. Make a pledge today to support our efforts to improve adult care for people with Spina Bifida. Together, we can really make a difference.

For additional information on ways to make an impact, please contact Jenna Brown, National Director of Development, at [email protected]

 

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