Uncharted Waters: A Father's Perspective

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This Father's Day, SBA board member, Doug Burns, shares his story on having a son diagnosed with Spina Bifida.

"The World doesn't always fit for a kid with Spina Bifida. But you have to find ways to make it fit." - Doug, board member

When your child is diagnosed with Spina Bifida, there is so much unknown and it is scary and overwhelming to navigate on your own. As Doug stated, he and his family felt fortunate to be introduced to the Spina Bifida Association. "SBA opened up a wealth of information and resources that were available to our family."

Through the advocacy work done at SBA, Doug's family was able to connect with other families who were experiencing or had already navigated the uncharted waters of life with Spina Bifida. "The families we networked with were able to provide necessary answers and assistance, during a time we felt lost. SBA was a source of help and comfort at a very difficult time in our lives. SBA became our rock and an extension of our family."

Doug’s Father’s Day story is like countless other families who have been impacted by a Spina Bifida diagnosis. Your support makes it possible to foster innovations in healthcare for thousands of families to have a better and brighter future, as they navigate life together. Thank you for making a difference.



For additional information on ways to make an impact, please contact Jenna Brown, National Director of Development, at [email protected]



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