I am excited to participate in the Walk-N-Roll for Spina Bifida 2019! This one-mile, community-building and awareness-generating event celebrates the infants, toddlers, kids, teenagers, and adults affected by this complex birth defect. I am dedicated to help the Spina Bifida Association (SBA) advance its mission of improving the quality of life of all affected by this challenging birth defect by raising funds and spreading awareness.
One in 2,858 will be born with Spina Bifida or another neural tube defect, making Spina Bifida the most commonly occurring birth defect in this country. The total average lifetime health costs for an infant born with Spina Bifida can exceed $1,000,000. Even though an estimated 60% of people living with Spina Bifida are adults yet there are only 10 adult clinics across the U.S. Can you imagine having to travel out of state or across the country to get medical care?
I am determined to help the SBA eliminate these challenges and create a brighter tomorrow for the nearly 166,000 Americans living with Spina Bifida. I am committed to raising $500 to support programs and services provided by the local SBA. Please join me by donating $50 today to help make a difference for this underserved community. Your contribution is 100% tax deductible and will help me reach my goal. Donations can be made here, on my personal webpage or via check made out to the Spina Bifida Association and mailed to me (made out to the SBA). If you’re unable to make a donation at this time, I hope you'll consider joining my team to Walk/Roll by my side at the event.