Welcome family, friends and all! I appreciate those of you who take the time to stop by my page to learn about me and why this particular event for Spina Bifida is important to me as well as many others who are also affected by it.
My name is Chelsea Nienaber I am a 28 year old woman who was born with Spina Bifida. When you are born with Spina Bifida or you know of someone who has it you know there are many challenges that come with it. I face a lot on a daily basis but nevertheless with all of the challenges I face life is a true gift that I cherish every day.
Together with my army of family and friends behind me we conquer the challenges of Spina Bifida with a little bit of faith, love through every victory and every obstacle, and a whole lot of hope so that we are sure to win every battle!
I hope you will consider making a donation or join my team to raise awareness for a cause very close to our heart. I look forward to participating in the Walk-N-Roll for Spina Bifida.
This one mile community building and awareness generating walk celebrates the infants, toddlers, kids, teenagers, and adults affected by this complex birth defect. I am dedicated to help the Spina Bifida Association (SBA) advance its mission of improving the quality of life of all affected by this challenging birth defect by raising funds and awareness.
One in 2,858 will be born with Spina Bifida or another neural tube defect, making Spina Bifida the most commonly occurring birth defect in this country. The total average lifetime health costs for an infant born with Spina Bifida can exceed $1,000,000. Even though an estimated 60% of people living with Spina Bifida are adults yet there are only 10 adult clinics across the U.S. Can you imagine having to travel out of state or across the country to get medical care?
I am determined to help the SBA eliminate these challenges and create a brighter tomorrow for the 177,000 Americans living with Spina Bifida. I am committed to raising $300 to support programs and services provided by the local SBA. Please donate $50 today to help make a difference for this underserved community.
Join me in supporting the 177,000 Americans that bravely cope with this challenging birth defect on a daily basis. All donations are 100% tax deductible and will help me reach my goal. Donations can be made here, on my personal webpage or via check made out to the Spina Bifida Association and mailed to me (made out to the SBA). If you’re unable to make a donation at this time, join me for the walk and register today.