As an adult living with Spina Bifida, I am excited to participate in the 2018 Walk-N-Roll for Spina Bifida! This one mile community building and awareness generating walk celebrates the infants, toddlers, kids, teenagers, and adults affected by this complex birth defect. As a member of the Northern CA Advisory Council, I am dedicated to help the Spina Bifida Association (SBA) advance its mission of improving the quality of life of all affected by this challenging birth defect by raising funds and awareness.
One in 2,858 will be born with Spina Bifida or another neural tube defect, making Spina Bifida the most commonly occurring birth defect in this country. The total average lifetime health costs for an infant born with Spina Bifida can exceed $1,000,000. Even though an estimated 60% of people living with Spina Bifida are adults, there are only 10 adult clinics across the U.S. Can you imagine having to travel out of state or across the country to get medical care? (Luckily I don't have to living in the Bay Area but many people do!!).
I am determined to help the SBA eliminate these challenges and create a brighter tomorrow for the 177,000 Americans living with Spina Bifida. I am excited to share that the Spina Bifida community has come a long way since I was born, as the below article shows. Hopefully, with the help of your donations and support, we can find a cure one day
I am committed to raising $2,000 to support programs and services provided by the local SBA. If you are able to, please donate today to help make a difference for this underserved community. Also, there are many companies out there that match donations so please check with your employer to see if they will match your donation to double the impact. Any amount helps!
So please join me in supporting the 177,000 Americans that cope with this challenging birth defect on a daily basis. All donations are 100% tax deductible and will help me reach my goal. Again, any amount helps! Donations can be made here, on my personal webpage or via check made out to the Spina Bifida Association and mailed to me (made out to the SBA). If you’re unable to make a donation at this time, you can also help by registering today to join me for the Walk and/or sign up to volunteer.