I'm running my first marathon in support of my best friend's daughter, Matilda Theisen. Matilda has Spina Bifida, which was discovered during her 20 week ultrasound. For those who don't know, Spina Bifida is a condition where the spinal cord grows outside of the spinal column during gestation. It can lead to physical and cognitive challenges for those who have the condition.
Matilda's amazing mommy endured in utero surgery when Matilda was 23 weeks to try and minimize the impacts of Spina Bifida. During this extremely complicated procedure, doctors closed the opening in Matilda's back while she was still in the womb. Because spinal cord damage from Spina Bifida is progressive during a pregnancy, the doctors hoped that the procedure would minimize the impacts of Spina Bifida as much as possible once Matilda was born.
The procedure which Matilda and her mommy endured is relatively new, and your donation will help ensure that funding is available for new and innovative ways to minimize the impacts of Spina Bifida for those who are impacted by the condition.
Today Matilda is 2.5 years old and is doing an amazing job learning how to walk. She shows no signs of cognitive challenges and is a happy little girl.