Born with the most severe type of Spina Bifida, Luca has overcome many obstacles in his three years. Within hours of birth he was rushed into emergency surgery to repair his open lesion. The following day, he need another life-saving surgery to prevent fluid building up in his brain. From the tiny baby that doctors told us wouldn't survive to the energetic toddler he is now, Luca began defying all the odds the minute he came into this world. 

Russell, Lillian, and I walk proudly with Luca wheeling at our side. We walk for him for many reasons other than the obvious one that he is our son and brother. We want to raise awareness that being diagnosed with Spina Bifida is not a death sentence. Spina Bifida is just a part of him but not all of him. We walk because we want the future of this medical complexity to be brighter for him. We walk because by the time he is an adult we want to be able to roll into an adult Spina Bifida clinic without having to travel thousands of miles. 

We are determined to help the SBA create a brighter future for the nearly 200,000 Americans living with Spina Bifida. Our team is committed to raising $500 to support programs and services provided by the local SBA. Join us in supporting the SBA by making a donation of $50 and make a difference for this underserved community.

All donations are 100% tax deductible and will help our team exceed our goal. Donations can be made here, on our personal webpage, on our individual pages or via check made out to the Spina Bifida Association and mailed to our team (made out to the SBA). If you’re unable to make a donation at this time, please register today to join our team.

Thanks in advance for your generous support! 


Get The Word Out